Day 2 of D-Blog Week: Letters

Today’s topic is to write a letter:

Letter writing day – Tuesday 5/10: In February the Wego Blog Carnival asked participants to write letters to their condition.  You can write a letter to diabetes if you’d like, but we can also take it one step further.  How about writing a letter to a fictional (or not so fictional) endocrinologist telling the doctor what you love (or not) about them.  How about a letter to a pretend (or again, not so pretend) meter or pump company telling them of the device of your dreams?  Maybe you’d like to write a letter to your child with diabetes.  Or a letter from your adult self to the d-child you were.  Whomever you choose as a recipient, today is the day to tell them what you are feeling.

I thought all day about what I would want to write and who I might write to.  I thought about writing a letter to Andy and Katie in the future, but with their certain type of diabetes, there are so many unknowns that I wouldn’t even begin to be able to conceive how to write that letter.   Instead, I decided I would write a letter to myself at the time of my son’s diagnosis.  If only I could have sent this letter to myself . . .

8-23-2005

Dear Christy,

You are a strong woman, but you are about to go through one of the hardest trials of your life so just take a breath and read.  Your son is very sick.  You have known this for weeks, months.  You knew something wasn’t right when he was born and it’s been tough for these first few months, but it’s about to get even harder.  You see, before your son was even conceived, something was amiss with the genes.  As the doctors rush around and try to figure out what is wrong, you are going to be calm on the outside, but you will be screaming and crying on the inside, and that’s ok.  They don’t know what’s wrong because the obvious is not so obvious due to his young age. 

You see, the doctor is going to tell you that your son has Type 1 Diabetes.  All of the doctors will be astounded because he is only 18 weeks old.  He will be the youngest diabetes diagnosis they have seen at this hospital.  It’s ok.  He will be treated and he will live.  You will have ups and downs.  There will be good days and bad days.  Stay strong.  He needs you to love him.  In about a year, you will learn that this is not really Type 1 Diabetes, but a different kind called Neonatal Diabetes.  Do research.  Find out all you can.  Reach out to others.  There will not be a lot of children like him because it is extremely rare.  But the ones you find will become like an extended family.  However, don’t forget about your own family in the process of reaching out to others.

You will have a daughter who will be born with the same gene mutation.  She will be ok too.  Just remember to love your children.  Not because of the miracle of their uniqueness, but because they are lovely creations of GOD.  God doesn’t make mistakes.  It’s ok if you go through depression and ask God “Why Us?”  It’s a normal part of the grieving process.  Through all of this, you will become closer to God and you will grow into a person that you wouldn’t even recognize now.  Other trials will come that will seem even harder than what you are going through right now. 

Just remember that you are strong. 

You can handle this. 

You will fall apart. 

You will cry.

But you will also laugh.

You will love.

You will be proud.

You will succeed.

And you will learn more than you ever thought you could about conditions that are not even in your vocabulary right now.  Use that knowledge to teach, spread awareness, and even change the circumstances of your children’s lives.

Sent with love from yourself, nearly 6 years in the future.

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About Christy

Christy Vacchio is a former teacher and now Science Instructional Coach in Cincinnati. She is an avid reader and researcher. While she has her bachelor's and master's degrees in education, she plans to get her PhD in Neuroscience in the future. She hopes to participate in research on Neonatal Diabetes and Developmental Delays one day.

4 thoughts on “Day 2 of D-Blog Week: Letters

  1. How comforting it would be if we really could send these letter to ourselves back then. To know that we make it through the first weeks, to know how truly strong we are and to understand how amazing these kids really are.

    Hugs and thanks for a wonderful letter!!

  2. I have tear rolling down my cheek as I type. I think your letter is fine. I will send a letter to the UK teams. Their work has been so important.

    I know even though we kind of have it better with no needles now, that fact we don’t know if it will always work is hard.
    Knowing that there are others out there who could benefit but don’t know yet is hard.
    The road isn’t paved very far ahead of us. We are paving it together with the others. But God will keep us as we go on together.

  3. I see I still have a lot to learn about the different kinds of diabetes….this is one I have not heard of before. I think I’ll become a follower on your blog, so I can learn more! 😉 Thanks for visiting my blog….And believe me, I was crying as I wrote that letter to my daughter. She was diagnosed at 10 1/2….she turns 18 in a couple months…

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